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POTS Video - Full length documentary
The Dysautonomia Information Network presents the first full length documentary about Postural Orthostatic Tachycardia Syndrome. Click here to order your copy of "Changes: Living with Postural Orthostatic Tachycardia Syndrome" today.
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Mayo Clinic presentation about POTS - Postural Orthostatic Tachycardia SyndromeIn this edition of Mayo Clinic Medical Edge, learn about Postural Orthostatic Tachycardia Syndrome (POTS), a debilitating condition that typically affects high-achieving teens. Presented by Vivian Williams |
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Dr Margaret Aranda-Ferrante suffers from POTS - LATV News Article
This shows the limited knowledge the medical industry has of Dysautonomia and Postural Orthostatic Tachycardia. She was lucky enough to meet Dr David Cannom who was able to diagnose the problem and help her. To get more information about her book No More Tears click here to view her blog |
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Mysterious syndrome affects some teensView this great video explaining the symptoms and issues of Postural Orthostatic Tacycardia Syndrome - as produced by Channel 7 News in Chicago and aired Nov 13, 2008 at 10:43PM. It references Dr. Barbara Deal at Children's Memorial Hospital in Chicago as she runs a POTS clinic there. It also references Dr. Deal a pediatric cardiologist and Dr. Blair Grubb a electrophysiologist at the University of Toledo Medical Center is one of the premiere experts researching the mysterious disorder. Dr. Barbara Deal - Children's Memorial Hospital Blair P. Grubb MD - Professor of Medicine and Pediatrics |
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Mayo Clinic presentation about Latest Research on POTSPhil Fischer, M.D., discusses the latest research on Postural Orthostatic Tachycardia Syndrome (POTS) |
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What is Postural Orthostatic Tachycardia Syndrome? Part TwoPostural Orthostatic Tachycardia Syndrome is a form of Dysautonomia. It is a life altering condition that results in a ... Postural Orthostatic Tachycardia Syndrome is a form of Dysautonomia. It is a life altering condition that results in a variety of symptoms; the most common being low blood pressure and a high heart rate. Thanks so much for watching!!!! Please help me spread awareness by showing people my videos and just talking about it! We can do this. XOXO,Kyli Credit for some of the information & facts goes to Potsplace.com (Grubb, 2000) Songs are: John Mayer-"Say" & Gnarls Barkley-"Crazy" (more) (less) |
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POTS Video - Postural Orthostatic Tachycardia Syndrome
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POTS on the news Me on the news talking about POTS ... |
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POTS Presentation 1 this is the first of what will be many presenatations about POTS! help us spread the word! leave a comment letting me ... this is the first of what will be many presenatations about POTS! help us spread the word! leave a comment letting me know what else you would like to see or any suggestions to make things better for you!!! thanks!!! (more) (less) |
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POTS Presentation 2- "Imagine..." Imagine having POTS and waking up every morning wondering if you are going to have a good day or bad day. Knowing that ... Imagine having POTS and waking up every morning wondering if you are going to have a good day or bad day. Knowing that even your good day will bring on challenges and symptoms from POTS. (more) (less) |
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WEBSITE LINKS:
www.dynakids.org/Documents/newsletter3.pdf
www.ndrf.org
http://www.potsplace.com/
www.stars.org.uk
http://www.mc.vanderbilt.edu/gcrc/adc/oi.html
http://www.immunesupport.com/library/showarticle.cfm/id/4347
http://www.ninds.nih.gov/health_and_medical/disorders/postural_tachycardia_syndrome.htm
http://www.syncope.org/
http://www.nymc.edu/fhp/centers/syncope/POTS.htm
http://www.mc.vanderbilt.edu/gcrc/adc/oi.html
ARTICLES:
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Carstar helps ‘NASCAR Angels’ aid a KC family in need Kansas City Star - MO,USA About four years ago, Katy Fuller, who was 9 at the time, was diagnosed with postural orthostatic tachycardia syndrome. “What happens is that your autonomic ... See all stories on this topic |
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‘NASCAR Angels’ Reality TV Show ‘Extreme Makeover Home Edition ... By Paulene Hinds This week’s episode features Katy Fuller of Kansas City, a teenager who suffers from Postural Orthostatic Tachycardia Syndrome (POTS), who inspired “NASCAR Angels” to fix her family’s 1996 Grand Marquis. ... Reality TV Magazine - http://www.realitytvmagazine.com/ |
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Orthostasis, the Autonomic Nervous System, and Abdominal Pain in ... Page: 696. DOI: 10.1097/01.mpg.0000338964.62926.28. Authors: Alexander, Mark E. Journal of Pediatric Gastroenterology... - http://www.jpgn.org/pt/re/jpgn/currenttoc.htm |
Sign a Petition to Raise awareness of Postural Orthostatic Tachycardia
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| http://www.medhelp.org/user_trackers/gallery/dysautonomia |
BLOGS/FACEBOOK:
The Blogs below are from individuals tackling POTS and are a great source for inforamtion related to Postural Orthostatic Tachycardia Syndrome and Dysautonomia.
By far, my favorite is the Blog and Facebook postings of Tyler Gurney a young college student:
Click here or the picture above to go to 12morepages.com
Dr Margaret Aranda-Ferrante's blog chronicling her own trials with Dysautonomia and POTS. Click here to view the blog Disblogged MD
FACEBOOK Channel:
Click here to check out the Dysautonomia Awareness Channel
YouTube Channel:
Doctors:
Dr. Benjamin David Levine - Cardiologist Dallas TX
IEM, 7232 Greenville Avenue Suite 435,
Dallas, TX 75231
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(214) 345-4619
Website
Dr David Cannom - LA, CA
Director of Cardiology at Good Samaritan Hospital
1245 Wilshire Blvd Suite 703
Los Angeles, CA 90017
213-977-0419
More info
Dr. Barbara Deal - Children's Memorial Hospital
2300 Children's Plaza, Chicago, Illinois 60614 -
773-880-4553
www.childrensmemorial.org
Blair P. Grubb MD - Professor of Medicine and Pediatrics
Director: Cardiac Electrophysiology Service - Health Science Campus
University of Toledo School of Medicine
3000 Arlington Ave - Toledo, Ohio 43560 -
419-383-6094